Comments on: When Diet -Not Drugs- Cures Epilepsy http://cookingandblogging.com/healthy-eating/when-diet-not-drugs-cures-epilepsy/ Cooking and Blogging Tue, 22 Feb 2011 03:32:07 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: MOHSEN KELARESTAGHI http://cookingandblogging.com/healthy-eating/when-diet-not-drugs-cures-epilepsy/#comment-1154 MOHSEN KELARESTAGHI Fri, 06 Feb 2009 09:49:39 +0000 http://cookingandblogging.com/?p=196#comment-1154 I have a 20 years old epileptice daughter and 16 years old epileptic son. I have a 20 years old epileptice daughter and 16 years old epileptic son.

]]> By: Cate Freyer http://cookingandblogging.com/healthy-eating/when-diet-not-drugs-cures-epilepsy/#comment-244 Cate Freyer Wed, 10 Sep 2008 14:49:35 +0000 http://cookingandblogging.com/?p=196#comment-244 Hi, my name is Cate and I work at the Epilepsy Center at the University of California, San Francisco. I loved reading your post! It is intriguing that your niece and another child you knew fared so differently... I thought that the people reading your blog might be interested to hear about a research study that I work on, the Epilepsy Phenome/Genome Project (www.epgp.org). This project is taking place at 13 epilepsy centers across the country, and is funded by the National Institutes of Health. The purpose is to better understand how genes influence epilepsy and a person's response to seizure medication. Participation involves a blood draw and answering questions, and you do not have to travel to a clinical center in order to participate. The study is enrolling 2 types of people: 1) people with epilepsy who also have a brother or sister with epilepsy, and 2) people who have seizures due to infantile spasms, Lennox-Gastaut Syndrome, polymicrogyria, or periventricular heterotopia. The findings from this study have the potential to improve epilepsy care for many families in the future, and so we'd like to get the word out to the entire epilepsy community. I'd be happy to share more information with anyone interested, and please let me know if anyone has suggestions for how to spread the word! Thanks, Cate Hi, my name is Cate and I work at the Epilepsy Center at the University of California, San Francisco.

I loved reading your post! It is intriguing that your niece and another child you knew fared so differently…

I thought that the people reading your blog might be interested to hear about a research study that I work on, the Epilepsy Phenome/Genome Project (www.epgp.org). This project is taking place at 13 epilepsy centers across the country, and is funded by the National Institutes of Health. The purpose is to better understand how genes influence epilepsy and a person’s response to seizure medication. Participation involves a blood draw and answering questions, and you do not have to travel to a clinical center in order to participate.

The study is enrolling 2 types of people: 1) people with epilepsy who also have a brother or sister with epilepsy, and 2) people who have seizures due to infantile spasms, Lennox-Gastaut Syndrome, polymicrogyria, or periventricular heterotopia. The findings from this study have the potential to improve epilepsy care for many families in the future, and so we’d like to get the word out to the entire epilepsy community.

I’d be happy to share more information with anyone interested, and please let me know if anyone has suggestions for how to spread the word!

Thanks,
Cate

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